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With the aim of sensitising the public and medical personnel to the seriousness of Sickle Cell Anaemia Disease, 35-year-old Sabrina Perry-Kazim is in the final stages of setting up a Non-Governmental Organisation to educate society on the disease that has troubled her for her entire life.Perry-Kazim, during a recent interview, explained that the organisation, Fight Against Sickle Cell Stigma is being formed because “it is not just about fighting sickle cell anaemia, it is also about fighting for our lives, with respect to our social and medical care.”She said that as a child growing up, she remembers having sleepless nights and seemingly endless bouts of pain, before she was diagnosed with the disease at age seven. Kazim added that a sickling test was done to ascertain that she had the sickle cell disease, and a haemoglobin (Hb) electrophoresis test was subsequently carried out, in order to find out what type of the disease she had.“I only found out about it when I was seven, after I would have been having many sleepless nights and instances of illnesses, and being rushed to the hospital on many occasions prior to finding out… they didn’t know what it was because at the time, it was not easy to detect the disease,” she related.However, Kazim explained that the main side effect of the disease, excruciating pain, is not exactly well received at health institutions, since the treatment is narcotics, and health professionals aren’t exactly eager to administer them. Consequently she contends that the stigma is being generated by the fact that the treatment for the disease is narcotics in the form or morphine and Pethidine.“Because Sickle cell disease deals with crisis, and a crisis is when your entire body, or parts of your body start to feel as though something bad is happening to it. So in turn, it reacts in a negative way- like it’s under attack… your body goes through a “painful crisis”She added that the pain is far beyond the reaches of regular pain medication, and this is where it gets complicated.“… The treatment is saline and narcotics in the way of Pethidine, or morphine, and because of that, the medical personnel assume, and are suspicious that the only reason you are coming to the hospital, whether or not you’re crying or screaming, is because you are seeking the drug.”Kazim said that “sicklers”, are sometimes branded or labelled “drug seekers”, whose main concern is to manipulate the medical practitioners into administering the drug so that they can get high. She explained that drugs are sometimes delayed or denied to sicklers, and this could cause a sickler’s condition to deteriorate, and may result in death.She explained that there are four stages of crisis, the first two being mild, and stages three and four being extremely painful.“The first two stages are mild, but as you go without treatment and medical attention, you go into rather extreme stages of three and four. If you are left for that long of a time, stages three and four could be very detrimental. You can die. If you came to the hospital at stage one, experiencing mild pain, and if you would have got treated, it wouldn’t threaten your life. But if they allow you to go into stages two, three, four,Cheap NFL Jerseys, then you’re at a position where not being treated may result in your death.”It is because of this, that she started FACES, and has since collaborated with a few other Caribbean territories. Kazim and her team at FACES have since collaborated with the Guyana Sickle Cell Association (GSCA), in order to sensitise the public.She added that the aim is to bring the welfare of sicklers to the government, and to gather as many persons living with the disease together for this cause.She explained that non-sicklers are encouraged to join FACES as the aim is to create a sort of buddy system, where each person living with the disease is linked to a non-sickler, so that that non-sickler can assist that affected person whenever the difficulties attached to the disease are activated.Sickle Cell is an inherited blood disorder; it includes chronic anaemia, and periodic episodes of painful crisis. Haemoglobin responsible for carrying oxygen from the lungs to all parts of the body is defective and causes the red blood cells to become stiff and assume a sickle shape. The sickle red cells cannot squeeze through small, blood vessels and cause blockage that deprive the organs and tissue of oxygen-carrying blood.
